Energy conservation for fatigue management in multiple sclerosis: a pilot randomized controlled trial

Author:

García Jalón E Guiomar1,Lennon Sheila2,Peoples Louise3,Murphy Sam3,Lowe-Strong Andrea4

Affiliation:

1. Northern Ireland Cerebral Palsy Register, School of Nursing and Midwifery, Queen’s University Belfast, Belfast, UK

2. Physiotherapy, School of Medicine, Flinders University, Adelaide, South Australia

3. School of Psychology, University of Ulster, Londonderry, UK

4. Health and Rehabilitation Sciences Research Institute and School of Health Sciences, University of Ulster, Belfast, UK

Abstract

Objective: To develop and test the feasibility of an energy conservation programme to manage fatigue in multiple sclerosis. Design: A pilot randomized controlled trial. Setting: Community setting. Subjects: People with multiple sclerosis reporting fatigue. Interventions: An energy conservation programme was compared to a peer support group. Both interventions were delivered in group format with 2-hour sessions once a week for five weeks. Patients’ views about the interventions were sought in discussion groups one week post intervention. Main measures: The primary feasibility outcomes were recruitment and adherence. Other outcome measures were the Fatigue Impact Scale, Fatigue Severity Scale, MS-Impact Scale-29, MS Self-efficacy Scale, Beck’s Depression Scale-Fast Screen and Epworth Sleepiness Scale. Outcomes were administered at baseline, post intervention, 6-week and 3-month follow-up. Results: Almost 30% of the people approached to take part in the study did not commit to participation because of transport/time issues. Twenty-three patients took part in the study. Three patients dropped out, one reporting adverse effects. A power calculation indicated that a sample of 56 (28 per group) would be required for a main randomized controlled trial. Patients valued peer support and those in the energy conservation group described the programme as useful, but reported difficulties completing some practice activities. Conclusion: An energy conservation programme in the community is feasible and welcomed by people with multiple sclerosis. However, future research needs to consider longer follow-ups and practical issues to improve recruitment rate by accommodating to patients’ needs.

Publisher

SAGE Publications

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation

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