Dementia: The need for attitudinal change

Abstract

Objective To undertake a systematic inquiry into the experience of living with dementia in the community. Design Action research, underpinned by critical hermeneutics, brought together action and reflection, theory and practice to generate knowledge. Data were gathered by interviews and observations in participants’ homes, and focus group discussions in community settings. Participants Eleven people with mild to moderate dementia and their primary caregiver aged 59–84, living in Auckland, New Zealand. Results The findings reveal a conflict between living positively with dementia, and enduring the negative attitudes that typify the dominant social discourse. The central argument arising from the findings is the significance of personal attitudes. Conclusions Implications for policy makers, health care providers, and caregivers highlight the need to change the ways in which dementia is perceived. The pursuit of positive attitudes will do much to change social perceptions and enable people with dementia to live with a sense of well-being.