Ethical Considerations in the ENABLE Project

Author:

Bjørneby Sidsel1,Topo Päivi2,Cahill Suzanne3,Begley Emer3,Jones Kerry4,Hagen Inger1,Macijauskiene Jurate5,Holthe Torhild6

Affiliation:

1. Own Company,

2. National Research and Development Centre for Welfare and Health (STAKES) Finland,

3. Dementia Services Information and Development Centre, Dublin,

4. Dementia Voice, UK,

5. Kaunas University of Medicine, Lithuania,

6. Norwegian Dementia Research Centre,

Abstract

This article describes the ethical considerations and the framework that formed the basis for the design of the research methods, as well as the basis for choosing the devices to be tried out, in the ENABLE project. The principles of autonomy, beneficence and justice are defined and applied to an analysis of researchers’ experience. Some of the ethical difficulties arising from conducting an intervention study of this type with persons with dementia are outlined. The article needs to be read in conjunction with the other ENABLE articles published in this issue of Dementia.

Publisher

SAGE Publications

Subject

General Social Sciences,Sociology and Political Science,General Medicine

Reference16 articles.

1. The Akon Series;Downs, M.,1997

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