The Acceptability and Usefulness of Positive Behaviour Support Education for Family Carers of People With Frontotemporal Dementia: A Pilot Study

Author:

Fisher Alinka C.1ORCID,Cheung Sau C.2,O’Connor Claire M. C.34,Piguet Olivier2

Affiliation:

1. Disability and Community Inclusion, College of Nursing and Health Sciences, Flinders University, Bedford Park, Australia

2. School of Psychology and Brain & Mind Centre, The University of Sydney, Sydney, Australia

3. Centre for Positive Ageing, HammondCare, Sydney, Australia

4. School of Population Health, The University of New South Wales, Sydney, Australia

Abstract

Aim This pilot study investigated the acceptability and usefulness of 4 weekly Positive Behaviour Support (PBS) education sessions (delivered face-to-face and online) for family carers of individuals diagnosed with behavioural-variant frontotemporal dementia (bvFTD). These sessions were adapted from the Family-directed Approach to Brain injury (FAB)-PBS program to the FTD population. Methods A pre-test post-test mixed-methods design was utilized. Primary outcome measures included a Carer Confidence questionnaire and post-intervention Feedback Questionnaire. Assessments were conducted prior to the 4-week education program, immediately following the final session and a 3 months follow-up. Results Ten family carers completed the 4 PBS education sessions and indicated that the program was helpful in providing behaviour support. No significant changes in confidence ratings were found before and following the education sessions. A majority of participants, however, reported positive changes to their approach in providing behaviour support, with key themes including ‘recognising the function of behaviour’, ‘changing their own behaviour’ and ‘promoting a calmer approach’. Conclusions The FAB-PBS education sessions demonstrate to be an acceptable approach to increasing the capability of family carers in providing behaviour support to individuals with FTD, which will need to be confirmed in a larger feasibility study.

Funder

National Health and Medical Research Council

University of Sydney

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Geriatrics and Gerontology,Neurology (clinical)

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