Do Socioeconomic Factors Influence Knowledge, Attitudes, and Representations of End-of-Life Practices? A Cross-Sectional Study

Author:

Bérubé A.12ORCID,Tapp D.12,Dupéré S.1,Plaisance A.12,Bravo G.3,Downar J.4,Couture V.15

Affiliation:

1. Faculty of Nursing, Laval University, Pavillon Ferdinand-Vandry, local A-3645-D, Quebec City, QC, Canada

2. Cardiology Department, Quebec Heart and Lung Institute Research Center–Laval University, Quebec City, QC, Canada

3. Faculty of Medicine and Health Sciences, Sherbrooke University, Sherbrooke, QC, Canada

4. Department of Medicine, University of Ottawa, Ottawa, ON, Canada

5. Population Health and Optimal Health Practices Axis, Research Center of the CHU de Québec-Université Laval, Quebec, QC, Canada

Abstract

Objective Access to palliative and end-of-life (EOL) care might be influenced by knowledge, attitudes, and representations of these practices. Socioeconomic factors might then affect what people know about EOL care practices, and how they perceive them. This study aims to compare knowledge, attitudes, and representations regarding EOL practices including assisted suicide, medical assistance in dying, and continuous palliative sedation of adults, according to socioeconomic variables. Methods A cross-sectional community-based questionnaire study featuring two evolving vignettes and five end-of-life practices was conducted in Quebec, Canada. Three sample subgroups were created according to the participants’ perceived financial situation and three according to educational attainment. Descriptive analysis was used to compare levels of knowledge, attitudes, and representations between the subgroups. Results Nine hundred sixty-six (966) people completed the questionnaire. Two hundred and seventy participants (28.7%) had a high school diploma or less, and 42 participants (4.4%) were facing financial hardship. The majority of respondents supported all end-of-life options and the loosening of eligibility requirements for medical assistance in dying. Differences between subgroups were minor. While respondents in socioeconomically disadvantaged subgroups had less knowledge about EOL practices, those with lower educational attainment were more likely to be in favor of medical assistance in dying, and less likely to favor continuous palliative sedation. Conclusions People living with situational social and economic vulnerabilities face multiple barriers in accessing health care. While they may have poorer knowledge about EOL practices, they have a positive attitude towards medical assistance in dying and assisted suicide, and a negative attitude towards continuous palliative sedation. This highlights the need for future research and interventions aimed at empowering this population and enhancing their access to EOL care.

Funder

Réseau Québécois de Recherche en soins palliatifs et de fin de vie

Publisher

SAGE Publications

Subject

General Medicine

Reference55 articles.

1. World Health Organization. Palliative care. Published August 5, 2020. Accessed February 27, 2022. https://www.who.int/news-room/fact-sheets/detail/palliative-care#:∼:text=Palliative%20care%20is%20explicitly%20recognized,a%20wide%20range%20of%20diseases.

2. Health Canada. Medical assistance in dying. Published June 16, 2016. Accessed March 27, 2022. https://www.canada.ca/en/health-canada/services/medical-assistance-dying.html.

3. The Worldwide Hospice Palliative Care Alliance

4. “Just too busy living in the moment and surviving”: barriers to accessing health care for structurally vulnerable populations at end-of-life

5. Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life

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