1. Departments of Epidemiology and Health Policy Research, Institute for Child Health Policy, University of Florida, Gainesville, Florida, USA;
2. Hospice Palliative Care Association of South Africa, Pinelands, South Africa;
3. Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom;
4. Very Special Kids, Malvern, Victoria, Australia;
5. Departments of Epidemiology and Health Policy Research, Institute for Child Health Policy, Gainesville, Florida, USA