The Challenge of Developing a Regional Palliative Care Data System: A Tale of Two Cities-Reference-Cited by-同舟云学术

The Challenge of Developing a Regional Palliative Care Data System: A Tale of Two Cities

Published:2002-03 Issue:1 Volume:18 Page:7-14
ISSN:0825-8597
Container-title:Journal of Palliative Care
language:en
Short-container-title:J Palliat Care

Author:

Critchley Patrick P.¹,Lohfeld Lynne²,Maxwell David³,Mcintyre Paul⁴,Reyno Leonard⁴

Affiliation:

1. Department of Family Medicine, Faculty of Health Sciences, McMaster University, Hamilton

2. St. Joseph's Health Care System Research Network, the Father Sean O'Sullivan Research Centre, St. Joseph's Hospital, Hamilton, and St. Joseph's Hospital and Home, Guelph, Ontario

3. Department of Family Medicine, Faculty of Medicine, Dalhousie University, and QEII Health Sciences Centre, Halifax

4. Department of Family Medicine and Medicine, Faculty of Medicine, Dalhousie University, and QEII Health Sciences Centre, Halifax, Nova Scotia, Canada

Abstract

This article reviews the purposes of health care databases and the findings from a literature review of the use of patient databases in palliative care. We present the history and goals of databases developed in two Canadian settings, Hamilton and Halifax. We present data on the strengths, limitations, and difficulties encountered in each setting. We review the types of data collected and the potential of these databases, and we offer practical recommendations for others looking to set up such systems.

Publisher

SAGE Publications

Subject

General Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/082585970201800103

Reference27 articles.

1. The Use of the Rotterdam Symptom Checklist in Palliative Care

2. Assessment of the quality of life of patients with advanced and end-stage cancer or serious infections with a symptom-based or an impact-based instrument

3. Family Caregiver Quality of Life

4. Quality of Life in Terminal Illness: Defining and Measuring Subjective Well-Being in the Dying

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