Reliability and Validity of the Traditional Chinese Version of the Advance Care Planning Engagement Survey: A Pilot Evaluation in Taiwanese Outpatients

Author:

Wei Fang-Chun1,Hsu Chieh-Kuan1ORCID,Wu Yu-Lin2,Liao Jung-Yu3,Huang Chi-Hsien456,Hsiung Chao Agnes7,Yu Sang-Ju8,Lin Cheng-Pei910,Chen Ping-Jen111213ORCID

Affiliation:

1. Department of Nursing, Cathay General Hospital, Taipei, Taiwan

2. Department of Nursing, St. Mary's Junior College of Medicine, Nursing and Management, Yilan, Taiwan

3. Department of Public Health, Kaohsiung Medical University, Kaohsiung, Taiwan

4. Department of Community Healthcare and Geriatrics, Nagoya University Graduate School of Medicine, Nagoya, Aichi Prefecture, Japan

5. Department of Family Medicine, E-Da Hospital, Kaohsiung, Taiwan

6. School of Medicine for International Students, College of Medicine, I-Shou University, Kaohsiung, Taiwan

7. Institute of Population Health Sciences, National Health Research Institutes, Miaoli, Taiwan

8. Home Clinic Dulan, Taitung, Taiwan

9. Institute of Community Health Care, College of Nursing, National Yang Ming Chiao Tung University, Taipei, Taiwan

10. Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK

11. Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK

12. Department of Family Medicine, Kaohsiung Medical University Hospital, Kaohsiung Medical University, Kaohsiung, Taiwan

13. School of Medicine, Kaohsiung Medical University, Kaohsiung, Taiwan

Abstract

Objective: The Advance Care Planning Engagement Survey (ACP-ES) has proven effective in evaluating individuals’ engagement in advance care planning (ACP). However, a Traditional Chinese version of ACP-ES (ACPES-TC) has not yet been developed. Therefore, this study aimed to translate and preliminarily validate the ACPES-TC in the Taiwanese context. Material and Methods: A forward and backward translation process was conducted. The translated questionnaire was confirmed by clinical and academic experts. The ACPES-TC was then evaluated for its reliability and validity with participants in the community and from an outpatient clinic in a medical center in Northern Taiwan. The participants comprised healthy people aged 20 to 30 years and patients ≥55 years old, recruited from September 17 to October 28, 2019. Results: Seventy people were recruited, including 20 people aged 20 to 30 years in the community and 50 patients ≥ 55 years old from clinics. The ACPES-TC scores are significantly higher among those of older age, having financial independence, and under long-term medication ( p < .05). The patients’ preference for health-related decision-making is significantly correlated with the ACPES-TC score; the point-biserial correlation coefficient is 0.46 ( p < .001). The discriminant and criterion-related validities are verified. The ACPES-TC demonstrated a good internal consistency (Cronbach's α .97), acceptable one-week test-retest reliability (overall intraclass correlation coefficient 0.86), and low practice effect between the test and retest (Cohen's d .43). Conclusion: The overall reliability and validity of the ACPES-TC are fair, which could be used to evaluate the patients’ engagement in ACP in Taiwan. However, further studies with a full-scale psychometric evaluation are needed.

Publisher

SAGE Publications

Subject

General Medicine

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