Looking beyond Disfigurement: The experience of Patients with Head and Neck Cancer-Reference-Cited by-同舟云学术

Looking beyond Disfigurement: The experience of Patients with Head and Neck Cancer

Published:2014-03 Issue:1 Volume:30 Page:5-15
ISSN:0825-8597
Container-title:Journal of Palliative Care
language:en
Short-container-title:J Palliat Care

Author:

Henry Melissa¹,Ho Angela²,Lambert Sylvie D.³,Carnevale Franco A.⁴,Greenfield Brian⁵,MacDonald Christina⁶,Mlynarek Alex⁷,Zeitouni Anthony⁸,Rosberger Zeev⁹,Hier Michael¹⁰,Black Martin¹¹,Kost Karen¹²,Frenkiel Saul¹³

Affiliation:

1. M Henry (corresponding author): Departments of Psychology and Oncology, McGill University; Department of Otolaryngology — Head and Neck Surgery, McGill University, Montreal, Quebec, Canada;

2. Department of Otolaryngology — Head and Neck Surgery, Jewish General Hospital; Louise-Granofsky Psychosocial Oncology Program, Segal Cancer Centre, Jewish General Hospital, 3755 Côte Ste. Catherine Rd, Room E-904, Montreal, Quebec, Canada, H3T 1E2; SD Lambert: Translational Cancer Research Unit, Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, University of New South Wales, Liverpool, New South Wales, Australia;

3. A Ho: Faculty of Medicine, McGill University, Montreal, Quebec, Canada; FA Carnevale: School of Nursing, McGill University, Montreal, Quebec, Canada;

4. Department of Pediatrics, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec Canada; B Greenfield: Department of Psychiatry, McGill University, Montreal, Quebec, Canada;

5. Department of Psychiatry, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada;

6. C MacDonald: Department of Otolaryngology — Head and Neck Surgery, Jewish General Hospital, Montreal, Quebec, Canada;

7. A Mlynarek: Department of Otolaryngology — Head and Neck Surgery, McGill University, Montreal, Quebec, Canada; Department of Otolaryngology — Head and Neck Surgery, Jewish General Hospital, Montreal, Quebec, Canada; A Zeitouni: Department of Otolaryngology — Head and Neck Surgery, McGill University, Montreal, Quebec, Canada;

8. Department of Otolaryngology — Head and Neck Surgery, Royal Victoria Hospital, McGill University Health Centre, Montreal, Quebec, Canada;

9. Z Rosberger: Departments of Psychology and Oncology, McGill University, Montreal, Quebec, Canada;

10. Louise-Granofsky Psychosocial Oncology Program, Segal Cancer Centre, Jewish General Hospital, Montreal, Quebec, Canada;

11. M Hier: Departments of Oncology and Otolaryngology — Head and Neck Surgery, McGill University, Montreal, Quebec, Canada;

12. Department of Otolaryngology — Head and Neck Surgery, Jewish General Hospital, Montreal, Quebec, Canada; M Black, S Frenkiel: Department of Otolaryngology — Head and Neck Surgery, McGill University, Montreal, Quebec, Canada;

13. Department of Otolaryngology — Head and Neck Surgery, Jewish General Hospital, Montreal, Quebec, Canada;

Abstract

Despite the frequent occurrence of head and neck cancer (HNC) disfigurement, little is known about its psychosocial impact on patients. This study aimed to understand the lived experience of disfigurement in HNC and explore what patients considered to be its influences. Fourteen disfigured HNC patients participated in a 45-to-120-minute in-depth, semi-structured interview, which was analyzed qualitatively using interpretive phenomenology. A majority of participants (64 percent) were considered to be at an advanced cancer stage (stage III or stage IV). Patients’ experiences revolved around the concept of a ruptured self-image (a discontinuity in sense of self). Forces triggering this ruptured self-image created a sense of “embodied angst”, in which disfigurement served as a constant reminder of the patient's cancer and associated foundational malaise. Other influences fostered a sense of normalcy, balance, and acceptance. Participants oscillated between these two states as they grew to accept their disfigurement. This study's findings could guide supportive interventions aimed at helping patients face head and neck surgery.

Publisher

SAGE Publications

Subject

General Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/082585971403000102

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