Palliative Care at Home: Reflections on HIV/AIDS Family Caregiving Experiences

Author:

Stajduhar Kelli I.1,Davies Betty2

Affiliation:

1. Doctoral Student, University of British Columbia School of Nursing, British Columbia, Canada

2. University of British Columbia School of Nursing and British Columbia Research Institute for Child and Family Health, University of British Columbia, Vancouver, British Columbia, Canada

Abstract

This study explored the day-to-day experiences of family members providing care at home for their dying loved one with HIV/AIDS. In-depth interviews with seven caregivers were analyzed using grounded theory qualitative methods. A conceptualization of the family caregiving experience portrays HIV/AIDS caregiving as an intense, emotional, and powerful experience filled with pride and enrichment, and conversely, with anger and disillusionment. Findings reflected a significant need for interventions designed to provide direct and effective support for family members caring for a loved one with HIV/AIDS.

Publisher

SAGE Publications

Subject

General Medicine

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