The Path of Cicely Saunders: The “Peculiar Beauty” of Palliative Care

Author:

Miccinesi Guido1,Caraceni Augusto2,Garetto Ferdinando3,Zaninetta Giovanni4,Bertè Raffaella5,Broglia Chiara M.6,Farci Bruno7,Aprile P. Lora8,Luzzani Massimo9,Marzi Annamaria M.10,Mercadante Sebastiano11,Montanari Luigi12,Moroni Matteo13,Piazza Elena14,Pittureri Cristina15,Tassinari Davide16,Trentin Leonardo17,Turriziani Adriana18,Zagonel Vittorina19,Maltoni Marco20

Affiliation:

1. Clinical Epidemiology Unit, Istituto per lo Studio, la Prevenzione e la Rete Oncologica, Firenze, Italy

2. Palliative Care, Pain Therapy and Rehabilitation Unit, National Tumor Institute (INT) IRCCS Foundation, Milano, Italy

3. FARO ONLUS Foundation & Palliative Care Unit, Humanitas Gradenigo Hospital, Torino, Italy

4. Domus Salutis Hospice, Teresa Camplani Foundation, Brescia, Italy

5. Oncology Department, Palliative Care, Guglielmo da Saliceto Hospital, Piacenza, Italy

6. Oncology Unit, Policlinico San Matteo IRCCS Foundation, Pavia, Italy

7. Quartu Sant’Elena Hospice, Cagliari, Italy

8. Italian College of General Practitioners and Primary Care, Desenzano del Garda, Italy

9. Palliative Care, Department of Geriatrics, Orthogeriatrics and Rehabilitation Frailty Area, E.O. Galliera Hospital, Genova, Italy

10. Modena and Reggio Emilia University & Casa Madonna dell’Uliveto Hospice, Albinea, Italy

11. Anesthesia & Intensive Care and Pain Relief & Palliative Care Unit, La Maddalena Cancer Center & Palermo University, Palermo, Italy

12. Palliative Care Unit, AUSL Romagna (Local Health Authority), Lugo, Italy

13. Maria Teresa Chiantore Seragnoli Hospice ONLUS Foundation, Bentivoglio, Italy

14. Medical Oncology, Luigi Sacco University Hospital, Milano, Italy

15. Palliative Care and Hospice Unit, AUSL Romagna (Local Health Authority), Savignano sul Rubicone, Italy

16. Department of Oncology & Hospice and Palliative Care Unit, Degli Infermi Hospital, Rimini, Italy

17. Palliative Care and Pain Therapy Unit, Veneto Institute of Oncology (IOV) IRCCS, Padova, Italy

18. Palliative Care Unit, Università Cattolica del Sacro Cuore, Roma, Italy

19. Medical Oncology Unit 1, Veneto Institute of Oncology (IOV) IRCCS, Padova, Italy

20. Palliative Care Unit, Istituto Scientifico Romagnolo per lo Studio e la Cura dei Tumori (IRST) IRCCS, Meldola, Italy

Abstract

This paper is aimed at focusing on the writings and the experience of the Hospice movement Founder, Dame Cicely Saunders. The in-depth analysis carried out had the objective of verifying if “the way” of Cicely to understand, live and propose palliative care was still current and “beautiful”, so that we can nowadays refer to her fascinating “Original Palliative Care”. With “beauty” we mean, on the one hand, a way able to allow a personal path of research of the meaning of the disease and of the care, both for those who care and for those who are cared for. On the other hand, it seems to us that Cicely strongly suggests how this path can not be carried out alone, but is only possible within the context of a network of relationships and support, in a so called “relational autonomy”, for the patient, included in a “care ethics”. The authors believe that the work extensively documents as the overall approach of Cicely, traditional but always to be rediscovered, is still today the most convincing way of conception and action of palliative care.

Publisher

SAGE Publications

Subject

General Medicine

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