Parental behaviour in paediatric chronic pain: A qualitative observational study

Author:

Dunford Emma12,Thompson Miles1,Gauntlett-Gilbert Jeremy12

Affiliation:

1. Bath Centre for Pain Services, Royal National Hospital for Rheumatic Diseases NHS Foundation Trust, UK

2. Centre for Pain Research, University of Bath, UK

Abstract

Objectives: Parental behaviour appears to influence the adjustment of children with chronic pain. However, research in this area has failed to produce consistent evidence. Studies have tended to rely on self-report measures derived from adult pain populations. This qualitative, observational research provides descriptive data of parental behaviour in a clinical environment. Design: A qualitative observational study was made of parents and adolescents in a physically stressful setting. Modified grounded theory was used to analyse verbal and non-verbal behaviours. Methods: Eight parent–adolescent dyads seeking treatment for chronic pain were videoed during physical exercise sessions. Verbal and non-verbal behaviours were recorded and transcribed. Results: Four overarching categories emerged: ‘monitoring’, ‘protecting’, ‘encouraging’ and ‘instructing’. These often had both verbal and non-verbal aspects. Within these categories, more precise behavioural groups were also identified. Conclusions: This research identifies categories of parental behaviour that were derived directly from observation, rather than imposed on the basis of results from different populations. Four categories of behaviour were derived, which clarify and extend dimensions used in existing self-report instruments. Careful description of parental behaviours showed features that past research has neglected, and highlighted potential drawbacks of apparently positive parental actions.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Clinical Psychology,General Medicine,Pediatrics, Perinatology, and Child Health

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