Sense of mastery and attitude towards illness: Examining longitudinal benefits of a medical specialty camp for youth with sickle cell disease-Reference-Cited by-同舟云学术

Sense of mastery and attitude towards illness: Examining longitudinal benefits of a medical specialty camp for youth with sickle cell disease

Published:2022-12-11 Issue: Volume: Page:135910452211454
ISSN:1359-1045
Container-title:Clinical Child Psychology and Psychiatry
language:en
Short-container-title:Clin Child Psychol Psychiatry

Author:

Gillard Ann¹^ORCID,Gagnon Ryan²,Pashankar Farzana³,Balsamo Lyn³,Grafft Natalie⁴,Miranda Jacqueline⁴,Boruchov Donna⁵,Neri Caitlin⁶,Sprinz Philippa⁷,Longyear Christine¹

Affiliation:

1. The Hole in the Wall Gang Camp, Ashford, CT, USA

2. Parks, Recreation and Tourism Management, Clemson University, Clemson, SC, USA

3. Department of Pediatrics, Yale University School of Medicine, New Haven, CT, USA

4. Hematology Department, Boston Children’s Hospital, Boston, MA, USA

5. Pediatric Hematology and Oncology, Connecticut Children’s Medical Center, Hartford, CT, USA

6. Pediatric Hematology-Oncology, Boston Medical Center, Boston, MA, USA

7. Pediatric Hematology/Oncology, Hasbro Children’s Hospital, Providence, RI, USA

Abstract

Medical specialty camps can play an important role in the positive development of psychosocial outcomes for children and youth with sickle cell disease (SCD). This study examined how sense of mastery and attitude towards illness outcomes changed over 6 months for 100 campers aged 8–16 years with SCD. The outcomes were measured twice before and twice after camp. Latent growth curve modeling was used to analyze data. Results showed no changes in the outcomes for this study population. Implications for future research designs, populations, and outcomes are discussed, as are implications for communications about camp, and policy and practice.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Clinical Psychology,General Medicine,Pediatrics, Perinatology and Child Health

Link

http://journals.sagepub.com/doi/pdf/10.1177/13591045221145425

Reference23 articles.

1. Development of the Child Attitude Toward Illness Scale

2. Anxiety and depression in children and adolescents with sickle cell disease

3. The Role of a Disability-Specific Camp in Promoting Social Acceptance and Quality of Life for Youth With Hearing Impairments

4. Improvements in Hope and Beliefs about Illness Following a Summer Camp for Youth with Chronic Illnesses

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