1. 27. NIH-DOE Joint Subcommittee, “NIH-DOE guidelines for access to mapping and sequencing data and material resources,” (adopted December 7, 1992), available at (last visited January 28, 2019).
2. We must urgently clarify data-sharing rules
3. 21. European Commission, “Ethics and Data Protection” (November 14, 2018), available at (last visited January 28, 2019).
4. 3. NIH National Cancer Institute Genomic Data Commons, “The Next Generation Cancer Knowledge Network,” available at (last visited January 18, 2019).
5. 22. Id., at 10–11.