Whose Commons? Data Protection as a Legal Limit of Open Science

Author:

Phillips Mark,Knoppers Bartha M.

Abstract

Open science has recently gained traction as establishment institutions have come on-side and thrown their weight behind the movement and initiatives aimed at creation of information commons. At the same time, the movement's traditional insistence on unrestricted dissemination and reuse of all information of scientific value has been challenged by the movement to strengthen protection of personal data. This article assesses tensions between open science and data protection, with a focus on the GDPR.

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Reference27 articles.

1. 27. NIH-DOE Joint Subcommittee, “NIH-DOE guidelines for access to mapping and sequencing data and material resources,” (adopted December 7, 1992), available at (last visited January 28, 2019).

2. We must urgently clarify data-sharing rules

3. 21. European Commission, “Ethics and Data Protection” (November 14, 2018), available at (last visited January 28, 2019).

4. 3. NIH National Cancer Institute Genomic Data Commons, “The Next Generation Cancer Knowledge Network,” available at (last visited January 18, 2019).

5. 22. Id., at 10–11.

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