Data Sharing in the Context of Health-Related Citizen Science-Reference-Cited by-同舟云学术

Data Sharing in the Context of Health-Related Citizen Science

Published:2020 Issue:S1 Volume:48 Page:167-177
ISSN:1073-1105
Container-title:Journal of Law, Medicine & Ethics
language:en
Short-container-title:J. Law. Med. Ethics

Author:

Majumder Mary A.,McGuire Amy L.

Abstract

As citizen science expands, questions arise regarding the applicability of norms and policies created in the context of conventional science. This article focuses on data sharing in the conduct of health-related citizen science, asking whether citizen scientists have obligations to share data and publish findings on par with the obligations of professional scientists. We conclude that there are good reasons for supporting citizen scientists in sharing data and publishing findings, and we applaud recent efforts to facilitate data sharing. At the same time, we believe it is problematic to treat data sharing and publication as ethical requirements for citizen scientists, especially where there is the potential for burden and harm without compensating benefit.

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Link

http://journals.sagepub.com/doi/pdf/10.1177/1073110520917044

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