Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?-Reference-Cited by-同舟云学术

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Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

Published:2019 Issue:2 Volume:47 Page:336-341
ISSN:1073-1105
Container-title:Journal of Law, Medicine & Ethics
language:en
Short-container-title:J. Law. Med. Ethics

Author:

Rothstein Mark A.,Zawati Ma'n H.,Knoppers Bartha Maria

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Link

http://journals.sagepub.com/doi/pdf/10.1177/1073110519857291

Reference39 articles.

1. 31. Declaration of Helsinki (2008), available at (last visited April 26, 2019); Belmont Report, available at (last visited April 26, 2019).

2. 25. DNA Land (2017), available at (last visited April 26, 2019).

3. Revised CIOMS International Ethical Guidelines for Health-Related Research Involving Humans

4. Including all voices in international data-sharing governance

5. “Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority,”;Knoppers;IRB: Ethics and Human Research,2016

Cited by 2 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Returning individual research results in international direct-to-participant genomic research: results from a 31-country study;European Journal of Human Genetics;2022-04-28

2. International Data Sharing and Rare Disease: The Importance of Ethics and Patient Involvement;Rare Diseases;2020-03-25

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