Who Owns the Data in a Medical Information Commons?-Reference-Cited by-同舟云学术

Who Owns the Data in a Medical Information Commons?

Published:2019 Issue:1 Volume:47 Page:62-69
ISSN:1073-1105
Container-title:Journal of Law, Medicine & Ethics
language:en
Short-container-title:J. Law. Med. Ethics

Author:

McGuire Amy L.,Roberts Jessica,Aas Sean,Evans Barbara J.

Abstract

In this paper, we explore the perspectives of expert stakeholders about who owns data in a medical information commons (MIC) and what rights and interests ought to be recognized when developing a governance structure for an MIC. We then examine the legitimacy of these claims based on legal and ethical analysis and explore an alternative framework for thinking about participants' rights and interests in an MIC.

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Link

http://journals.sagepub.com/doi/pdf/10.1177/1073110519840485

Reference47 articles.

1. 30. Fla. Stat. Ann. §760.40(2)(a).

2. “Information Property: Rights and Responsibilities,”;Lipton;Florida Law Review,2004

3. 36. United States v. Kriesel, 720 F.3d 1137, 1144-47 (9th Cir. 2013).

4. Privacy As Intellectual Property?

5. 38. Cole v. Gene by Gene, Ltd., No. 1:14-cv-00004-SLG, 2017 U.S. Dist. LEXIS 101761, at *2 (D. Alaska June 30, 2017).

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