A Study to Elicit Behavioral Health Patients' and Providers' Opinions on Health Records Consent-Reference-Cited by-同舟云学术

A Study to Elicit Behavioral Health Patients' and Providers' Opinions on Health Records Consent

Published:2017 Issue:2 Volume:45 Page:238-259
ISSN:1073-1105
Container-title:Journal of Law, Medicine & Ethics
language:en
Short-container-title:J. Law. Med. Ethics

Author:

Grando Maria Adela,Murcko Anita,Mahankali Srividya,Saks Michael,Zent Michael,Chern Darwyn,Dye Christy,Sharp Richard,Young Laura,Davis Patricia,Hiestand Megan,Hassanzadeh Neda

Abstract

A main objective of this study is to assess the opinions of 50 behavioral health patients on selective control over their behavioral and physical health information. We explored patients' preferences regarding current consent models, what health information should be shared for care and research and whether these preferences vary based on the sensitivity of health information and/or the type of provider involved. The other objective of this study was to solicit opinions of 8 behavioral health providers on patient-driven granular control of health information and potential impact on care.Electronic surveys were implemented at an outpatient Behavioral Health facility that provides care for behavioral health patients with non-serious mental illnesses. The Patient Survey included questions regarding patients' demographics and about their concerns and preferences for data sharing for care and research. The Provider Survey included questions about their view on the current consent process and perceptions on barriers and facilitators to implement patient-controlled granular consent models.This novel study provides valuable preliminary data that can help guide future studies to better understand privacy choices of this underrepresented patient group.

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Link

http://journals.sagepub.com/doi/pdf/10.1177/1073110517720653

Reference34 articles.

1. 2. NCVHS for the U.S. Department of Health and Human Services, “Privacy and Confidentiality in the Nationwide Health Information Network,” available at (last visited May 24, 2017).

2. 6. “Nationwide Privacy and Security Framework for Electronic Exchange of Individually Identifiable Health Information,” available at (last visited May 24, 2017);

3. 19. See Dhopeshwarkar, , supra note 5.

4. 17. “Behavioral Health Information Network of Arizona, Consent Model Opt-In Versus Opt-Out,” available at (password protected; last visited March 4, 2016).

5. 15. “Arizona Health e-Connection. The Right Information to the Right Person, at the Right Time, for the Right Purpose,” available at (last visited May 24, 2017).

Cited by 22 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness;BMC Medical Ethics;2023-11-14

2. Views on sharing mental health data for research purposes: A qualitative study with people with mental illness;2022-11-07

3. My Data Choices: Pilot evaluation of patient-controlled medical record sharing technology;Health Informatics Journal;2022-10

4. Foundations for Meaningful Consent in Canada’s Digital Health Ecosystem: Retrospective Study;JMIR Medical Informatics;2022-03-31

5. Experience of clinical services shapes attitudes to mental health data sharing: findings from a UK-wide survey;BMC Public Health;2022-02-19