Latent grief: The unique and hidden grief of carers of loved ones with dementia

Abstract

This paper provides a preliminary model of latent grief, the very unique and hidden grief experience of family caregivers of individuals with dementia. This model is based on a critical review of both grief and dementia care literature, as well as our own clinical experience in working with these families. The model describes three dimensions of loss and a number of dynamics that contribute to the latency of the grief process. We see latent grief as a major factor in caregiver stress and burnout, and believe that an understanding of this process will help to validate the ongoing grief that is part of the caregivers' experience. This will allow caregivers to recognize that their emotional turmoil, which they perceive to be a result of the burden of care, is also in large part due to the losses they endure on a daily basis.