Empowering individuals with early dementia and their carers: An exploratory study in the Chinese context

Abstract

This article discusses an early dementia program developed for sufferers and family carers in a Chinese context. Instead of replicating formats of similar programs developed in Western countries, this program considered cultural issues and caring values that are unique to Chinese people. Its main objective was to empower sufferers and carers through educational activities and support programs. Observations and interviews were used for program evaluation. The program creates a “win-win” situation in which both parties experienced pleasurable feelings and developed a close relationship. It also highlights the values of “meaningful occupation” in dementia care. Furthermore, the program broadens our understanding of needs and concerns of sufferers and carers at early stages, which are deemed important to develop continuous dementia programs along the disease course.