Needs in Early Onset Dementia: A Qualitative Case From the NeedYD Study-Reference-Cited by-同舟云学术

Needs in Early Onset Dementia: A Qualitative Case From the NeedYD Study

Published:2010-12 Issue:8 Volume:25 Page:634-640
ISSN:1533-3175
Container-title:American Journal of Alzheimer's Disease & Other Dementiasr
language:en
Short-container-title:Am J Alzheimers Dis Other Demen

Author:

Bakker Christian¹,de Vugt Marjolein E.²,Vernooij-Dassen Myrra³,van Vliet Deliane²,Verhey Frans R. J.²,Koopmans Raymond T. C. M.⁴

Affiliation:

1. Florence, Mariahoeve, Centre for Specialized Care in Early Onset Dementia, Rijswijk, The Netherlands, Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, The Netherlands,

2. School for Mental Health and Neuroscience/Alzheimer Centre Limburg, Maastricht University Medical Centre, Maastricht, The Netherlands

3. Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, The Netherlands, Scientific Institute for Quality of Healthcare/Alzheimer Centre, Nijmegen, The Netherlands, Kalorama foundation, Nijmegen, The Netherlands

4. Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, Nijmegen, The Netherlands

Abstract

Objectives: The aim was to explore the experiences of a caregiver of a patient with early onset dementia (EOD) and the needs of patient and caregiver. Methods: A single case study design was used to explore (1) unmet needs of patient and caregiver and (2) caregiver’s experiences of transitions in care and health care services. A qualitative analysis was used to examine the data. Results: This study shows that a patient with EOD and the caregiver were confronted with specific issues during the care process, namely (1) prolonged time to diagnosis, (2) a lack of fit between needs and services, (3) the strain of dedication to care versus the caregiver’s own future perspective, (4) the need for response of health care services to changing individual preferences. Conclusion: This study illustrates specific issues related to early onset dementia that require specialized EOD care such as the differential and changing needs of patients and caregivers.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Geriatrics and Gerontology,Clinical Psychology,General Neuroscience

Link

http://journals.sagepub.com/doi/pdf/10.1177/1533317510385811

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