Parental versus Professional Perceptions of Obstacles to Pediatric Diabetes Care

Abstract

Parents of children with insulin-dependent diabetes mellitus (IDDM) (n=38) were surveyed to identify common and difficult obstacles to diabetes care. A list of these obstacles was cross-validated by a second parent sample (n=47) who rated each item according to how common and difficult each item was for them. The list then was rated by a sample of diabetes professionals (n=15) to evaluate the extent of agreement between parents and health care professionals regarding the frequency with which these obstacles occur and the difficulty they pose to everyday diabetes care. Professionals disagreed with parents regarding which obstacles were most common and difficult, generally rating problems as significantly more common and difficult ( t=5.20, P=<.001) than did the parents who experienced them. The results of the survey underscore the importance of health care providers evaluating the concerns of the local patient community when developing educational and treatment services for these patients.