Decisional Conflict Scale Use over 20 Years: The Anniversary Review

Author:

Garvelink Mirjam M.1ORCID,Boland Laura23,Klein Krystal4,Nguyen Don Vu1,Menear Matthew1,Bekker Hilary L.5,Eden Karen B.6,LeBlanc Annie,O’Connor Annette M.2,Stacey Dawn23ORCID,Légaré France17

Affiliation:

1. Centre de recherche sur les soins et les services de première ligne de l’Université Laval (CERSSPL-UL), Centre intégré universitaire de santé et services sociaux (CIUSSS) de la Capitale-Nationale, Québec City, QC, Canada

2. Faculty of Health Science, University of Ottawa, Ottawa, ON, Canada

3. Ottawa Hospital Research Institute, Ottawa, ON, Canada

4. Cambia Health Solutions, Portland, OR, USA

5. Leeds Institute of Health Sciences, School of Medicine, University of Leeds, Leeds, UK (HLB)

6. Pacific Northwest Evidence-Based Practice Center, Oregon Health & Science University (OHSU), Department of Medical Informatics & Clinical Epidemiology, Portland, OR, USA

7. Department of Family Medicine and Emergency Medicine, Université Laval, Quebec City, QC, Canada

Abstract

Background. The Decisional Conflict Scale (DCS) measures 5 dimensions of decision making (feeling: uncertain, uninformed, unclear about values, unsupported; ineffective decision making). We examined the use of the DCS over its initial 20 years (1995 to 2015). Methods. We conducted a scoping review with backward citation search in Google Analytics/Web of Science/PubMed, followed by keyword searches in Cochrane Library, PubMed, Ovid MEDLINE, EMBASE, CINAHL, AMED, PsycINFO, PRO-Quest, and Web of Science. Eligible studies were published between 1995 and March 2015, used an original experimental/observational research design, concerned a health-related decision, and provided DCS data (total/subscales). Author dyads independently screened titles, abstracts, full texts, and extracted data. We performed narrative data synthesis. Results. We included 394 articles. DCS use appeared to increase over time. Three hundred nine studies (76%) used the original DCS, and 29 (7%) used subscales only. Most studies used the DCS to evaluate the impact of decision support interventions ( n = 238, 59%). The DCS was translated into 13 languages. Most decisions were made by people for themselves ( n = 353, 87%), about treatment ( n = 225, 55%), or testing ( n = 91, 23%). The most common decision contexts were oncology ( n = 113, 28%) and primary care ( n = 82, 20%). Conclusions. This is the first study to descriptively synthesize characteristics of DCS data. Use of the DCS as an outcome measure for health decision interventions has increased over its 20-year existence, demonstrating its relevance as a decision-making evaluation measure. Most studies failed to report when decisional conflict was measured during the decision-making process, making scores difficult to interpret. Findings from this study will be used to update the DCS user manual.

Funder

Institute of Health Services and Policy Research

Tier 1 Canada Research Chair in Shared Decision-making and Knowledge Translation

Publisher

SAGE Publications

Subject

Health Policy

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