Community perspectives on support goals for young autistic children: A qualitative investigation

Author:

Waddington Hannah1ORCID,Jordan Phoebe1,Scott Eadi1,Minnell Hannah1,Patrick Lee2,van der Meer Larah12,Monk Ruth3,Andrew J. O. Whitehouse4,Tupou Jessica1

Affiliation:

1. Faculty of Education, Victoria University of Wellington – Te Herenga Waka, Wellington, New Zealand

2. Autism New Zealand, Wellington, New Zealand

3. Autistic member of the Autism New Zealand Community Advisory Group, New Zealand/School of Medical Sciences, University of Auckland, Auckland, New Zealand

4. Telethon Kids Institute, The University of Western Australia, Perth, Australia

Abstract

Goal setting is integral to the provision of effective support, but little is known about community perspectives on support goals for autistic children. A total of 41 autistic adults, 50 parents of autistic children and 31 clinical professionals living in New Zealand and Australia completed open-ended survey questions regarding their perceptions of support goals for young autistic children. Reflexive thematic analysis resulted in five overarching themes related to early support goals: (a) neurodiversity affirming, (b) change the environment, not the child, (c) helping adults to support autistic children, (d) quality of life and (e) respect boundaries. The perspectives of autistic adults, parents and professionals were mostly aligned.

Funder

National Health and Medical Research Council

Victoria University of Wellington

Publisher

SAGE Publications

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