Overview of the AOA National Joint Replacement Registry

Abstract

Objectives: Report the findings of the AOANJRR ACL Registry Pilot pilot study to determine the feasibility of establishing an ACL Registry in Australia. Methods: The study involved both patient (pre and post-operative questionnaire) and surgeon (ACL operative data form) derived data collection. The Patient Reported Outcome Measures (PROMs) collected are the KOOS short form, a further two subscales taken from the KOOS long form (Quality of Life; and Function, Sports and Recreation Activities), and the Marx Activity Scale. A variety of approaches were used to maximize the collection of PROMs. The proportion of procedures provided by each hospital was determined by comparison to government separation data. Results: Nine hospitals nationwide were involved with the study, with 803 patients recruited. Collection of surgeon reported data achieved was 99.9%. Collection of PROMs data showed that 55% of patients notified at 6 months and 58.5% of patients notified at 12 months responded. The proportion of all ACL procedures undertaken at each hospital and included in the study varied considerably. Conclusion: The study has shown that it is possible to collect surgeon derived data for those patients recruited for the study. The collection of PROMs however is more problematic.