The geriatrics research instrument library: A resource for guiding instrument selection for researchers studying older adults with multiple chronic conditions

Author:

Tisminetzky Mayra1ORCID,Delude Christopher2ORCID,Allore Heather G3,Anzuoni Kathryn2,Bloomstone Sarah2,Charpentier Peter4,Hepler John P5,Kitzman Dalane W5,McAvay Gail J3,Miller Michael5,Pajewski Nicholas M5,Gurwitz Jerry1

Affiliation:

1. University of Massachusetts Medical School and Meyers Health Care Institute, Worcester, MA, USA

2. Meyers Health Care Institute, Worcester, MA, USA

3. Yale School of Medicine and Yale School of Public Health, New Haven, CT, USA

4. Yale Data Coordinating Center, New Haven, CT USA

5. Wake Forest School of Medicine, Winston-Salem, NC, USA

Abstract

Background After the passage of the 21st Century Cures Act in the U.S., the Inclusion Across the Lifespan policy eliminates upper-age limits for research participation unless risk justified. Broader inclusion will necessitate the use of reliable instruments in research that characterize the health status and function of older adults with multiple chronic conditions. As there is a plethora of such instruments, the Geriatrics Research Instrument Library (GRIL) was developed as freely available online resource of data collection instruments commonly used in gerontological research. GRIL has been revised and updated by the Advancing Geriatrics Infrastructure and Network Growth (AGING) Initiative, a joint endeavor of the Health Care Systems Research Network (HCSRN) and the Older Americans Independence Centers (OAICs). Methods Extensive PubMed literature searches and domain expert feedback were utilized to inventory and update GRIL through the addition of instruments and compiling of instrument metadata. GRIL is hosted on the National Institute on Aging OAIC Coordinating Center website with a platform utilizing Microsoft Structured Query Language (SQL) and an Adobe ColdFusion application server. Tracking statistics are collected using Google Analytics. Results Presently, GRIL includes 175 instruments across 18 domains, including instrument metadata such as instrument description, copyright information, completion time estimates, keywords, available translations, and a link and reference to the original manuscript describing the instrument. The GRIL website includes user-friendly features such as mobile platforming and resource links. Conclusions GRIL provides a user-friendly public resource that facilitates clinical researchers in efficiently selecting appropriate instruments to measure clinical outcomes relevant to older adults across a full range of domains.

Publisher

SAGE Publications

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation,General Medicine

Reference16 articles.

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3. Health care systems research network. Retrieved October 20, 2020 from http://www.hcsrn.org.

4. Older Americans independence centers Claude D Pepper. Retrieved October 20, 2020 from http://www.peppercenter.org.

5. The AGING Initiative experience: a call for sustained support for team science networks

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