Cerebral Palsy—Long-Term Medical, Functional, Educational, and Psychosocial Outcomes

Author:

Mesterman Ronit1,Leitner Yael2,Yifat Rachel3,Gilutz Gabi2,Levi-Hakeini Ofra2,Bitchonsky Ora2,Rosenbaum Peter4,Harel Shaul2

Affiliation:

1. Institute for Child Development and Pediatric Neurology Unit, Division of Pediatrics, Tel Aviv Sourasky Medical Center, and Sackler Faculty of Medicine, Tel Aviv University, Israel,

2. Institute for Child Development and Pediatric Neurology Unit, Division of Pediatrics, Tel Aviv Sourasky Medical Center, and Sackler Faculty of Medicine, Tel Aviv University, Israel

3. Department of Communication Sciences and Disorders, University of Haifa, Israel

4. CanChild Center for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada

Abstract

Cerebral palsy, typically diagnosed in childhood, clearly continues into adulthood. This study describes the long-term medical, functional, educational, and psychosocial outcomes of people with cerebral palsy. Of the 203 people with cerebral palsy diagnosed and treated at the Child Development Center in Tel Aviv between 1975 and 1994, 163 (80%; age range 8-30 years, mean age 18.9 years, and median age 19 years) participated in a cross-sectional telephone survey. Half the respondents have chronic health problems: 78% report they experience gross motor disability, of whom 22% are wheelchair users; 30% to 50% need help in various activities of daily living; 35% have mental retardation; 79% completed 12 years or more of schooling; 78% live with their parents; 25% have served in the army; 23% have a driver’s license; and 23% work in competitive employment. The large majority is involved in varied leisure activities and report a high level of life satisfaction.

Publisher

SAGE Publications

Subject

Neurology (clinical),Pediatrics, Perinatology and Child Health

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