Seizures and Pain Uncertainty Associated With Parenting Stress and Rett Syndrome

Author:

Byiers Breanne J.1,Tervo Raymond C.23,Feyma Timothy J.3,Symons Frank J.1

Affiliation:

1. Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA

2. Department of Pediatrics, University of Minnesota, Minneapolis, MN, USA

3. Gillette Children’s Specialty Healthcare, St. Paul, MN, USA

Abstract

Data were collected parenting stress, adaptive behavior, pain, and health issues from the caregivers of 35 girls and women with Rett syndrome (mean age = 20.3). A majority (60%) of parents reported stress in the clinical range on at least 1 subscale of the Parenting Stress Index–Short Form. Seizures and uncertainty about their daughter’s gastrointestinal pain experience were significantly associated with higher levels of parenting stress. No other child factors (adaptive behavior, age, residential status) were significantly related to parenting stress. Factors related to chronic health concerns (seizures, ambiguous pain presentation) may be important when considering family stress issues in relation to general outcomes for girls with Rett syndrome and related developmental disorders.

Publisher

SAGE Publications

Subject

Neurology (clinical),Pediatrics, Perinatology and Child Health

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