The Concept of a Toolbox of Outcome Measures for Children With Cerebral Palsy

Author:

Wright F. Virginia12,Majnemer Annette34

Affiliation:

1. Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada

2. Department of Physical Therapy, University of Toronto, Toronto, Canada

3. School of Physical & Occupational Therapy, McGill University, Montréal, Quebec, Canada

4. Montreal Children’s Hospital-McGill University Health Centre, Montréal, Quebec, Canada

Abstract

Accurate and well-targeted measurement of a child’s abilities and participation in daily activities pre- and post-intervention is essential to understanding the effects of therapies provided by pediatric practitioners. There is growing interest in identification of outcome core sets for specified client groups. This article elaborates on the concepts to consider when selecting and interpreting measures from an outcomes toolbox for children with cerebral palsy. Principles discussed include use of self-report measures to open a dialogue with the child/parent; a holistic assessment approach to identify a child’s challenges, strengths, and contextual factors that can influence functioning; links between measurement and heightened engagement of the child/family in the rehabilitation process and goals; and the need to plan the evaluation and dialogue aspects of the assessment process. If clinicians across the international rehabilitation community draw from the same toolbox, the end result could be a cohesive approach and common language to outcome measurement.

Publisher

SAGE Publications

Subject

Neurology (clinical),Pediatrics, Perinatology and Child Health

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