Quality of Life for Children With Life-Limiting and Life-Threatening Illnesses: Description and Evaluation of a Regional, Collaborative Model for Pediatric Palliative Care-Reference-Cited by-同舟云学术

Quality of Life for Children With Life-Limiting and Life-Threatening Illnesses: Description and Evaluation of a Regional, Collaborative Model for Pediatric Palliative Care

Published:2010-09-08 Issue:3 Volume:28 Page:161-170
ISSN:1049-9091
Container-title:American Journal of Hospice and Palliative Medicine®
language:en
Short-container-title:Am J Hosp Palliat Care

Author:

Rogers Susan K.¹,Gomez Carlos F.²,Carpenter Philip²,Farley Jean³,Holson Debbie⁴,Markowitz Miriam⁵,Rood Brian⁵,Smith Karen⁵,Nigra Peter⁶

Affiliation:

1. District of Columbia Pediatric Palliative Care Collaboration,

2. District of Columbia Pediatric Palliative Care Collaboration

3. Georgetown University, The HSC Pediatric Center

4. The HSC Pediatric Center

5. Children's National Medical Center

6. Georgetown MD Candidate 2013

Abstract

The care of children in the U.S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.

Publisher

SAGE Publications

Subject

General Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/1049909110380594

Reference15 articles.

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2. Donnelly JP, Huff SM , Lindsey ML, Schumacher JD, eds. Progress in pediatric palliative care in New York state: a demonstration project. In: When Children Die. op. cit. pp. 638 & ff. and J. Donald Schumacher DJ. editor. In When Children Die. op. cit. pp. 638 & ff.

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