Family distress in palliative medicine: A pilot study of the Family APGAR Scale

Abstract

The family is essential to patients with advanced cancer. Family and caregiver distress, however, can impair optimal care and support of the patient. A five-item questionnaire, the Family APGAR Scale, was evaluated to determine family functioning levels of selected patients. The APGAR Scale has five components for measuring family functioning: Adaptation, Partnership, Growth, Affection, and Resolve. Fifty consecutive patients admitted to a palliative medicine inpatient unit were reviewed for a pilot study. Eligibility requirements included admission to the unit for the first time, and the ability to speak English and give informed consent. Fifteen patients and 11 primary care-givers participated. Despite the small sample, some significant family functioning issues were identified. Completing the study later with a larger sample will provide information that will help the multidisciplinary team better meet the needs of both patient and family.