Depressive Symptoms in Caregivers of Hospice Cancer Patients

Author:

Oliver Debra Parker1ORCID,Washington Karla T.2ORCID,Benson Jacquelyn2,Mayhara Masako3,Pitzer Kyle2,White Patrick4,Demiris George5

Affiliation:

1. Ira Kodner Professor of Research in Supportive Care, Goldfarb School of Nursing, Division of Palliative Medicine, Department of Medicine, Washington University in St. Louis, St. Louis, MO, USA

2. Division of Palliative Medicine, Department of Medicine, Washington University in St. Louis, St. Louis, MO, USA

3. Goldfarb School of Nursing, Division of Palliative Medicine, Washington University in St Louis, St. Louis, MO, USA

4. Stokes Family Endowed Chair and Chief, Division of Palliative Medicine, Department of Medicine, Washington University in St. Louis, St. Louis, MO, USA

5. Penn Integrates Knowledge University Professor, Department of Biobehavioral and Health Sciences, School of Nursing and Department of Biostatistics, Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA

Abstract

Objectives: Family members and close friends provide countless hours of care for patients enrolled in hospice care. They do so without pay, often sacrificing their own financial well-being and health in the process. This study asks 4 research questions: (1) What is the prevalence and severity of depressive symptoms among caregivers of hospice cancer patients? (2) What demographic and contextual factors (such as relationship with patient) are related to the severity of depressive symptoms among caregivers of hospice cancer patients? (3) Are caregiver quality of life and caregiver burden associated with depressive symptoms? and (4) Is baseline depression associated with change in depression over time? Methods: This was a secondary analysis of data collected in a cluster randomized controlled trial. Results: Thirty-five percent of caregivers reported depressive symptoms of moderate or greater severity. These depressive symptoms were found to increase depending on the relationship of the caregiver to the patient. Caregivers with higher reported burden and lower reported quality of life were also found to have higher depressive symptoms. Significance of Results: Hospice agencies are encouraged to assess caregiver depressive symptoms and have protocols in place to assist caregivers with high depressive symptoms.

Funder

National Cancer Institute

Barnes Jewish Hospital Foundation, St. Louis, Missouri

Publisher

SAGE Publications

Subject

General Medicine

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