The Experiences of Suffering of Palliative Care Informal Caregivers in Malaysia-Reference-Cited by-同舟云学术

The Experiences of Suffering of Palliative Care Informal Caregivers in Malaysia

Published:2013-01-21 Issue:5 Volume:30 Page:473-489
ISSN:1049-9091
Container-title:American Journal of Hospice and Palliative Medicine®
language:en
Short-container-title:Am J Hosp Palliat Care

Author:

Beng Tan Seng¹,Guan Ng Chong²,Seang Lim Kheng¹,Pathmawathi Subramaniam³,Ming Moy Foong⁴,Jane Lim Ee¹,Chin Loh Ee¹,Loong Lam Chee¹

Affiliation:

1. Department of Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

2. Department of Psychological Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

3. Department of Nursing Science, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

4. Department of Social and Preventive Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

Abstract

A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 15 palliative care informal caregivers in University Malaya Medical Centre. The data were thematically analyzed. Seven basic themes were generated (1) empathic suffering, (2) anticipatory grief, (3) obsessive–compulsive suffering, (4) helpless–powerless suffering, (5) obligatory suffering, (6) impedimental suffering, and (7) repercussion suffering. A model of compassion suffering was conceptualized from the analysis. This model may serve as a guide in the assessment and management of suffering in palliative care informal caregivers.

Publisher

SAGE Publications

Subject

General Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/1049909112473633

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