The Experiences of Suffering of Palliative Care Patients in Malaysia

Author:

Beng Tan Seng1,Guan Ng Chong2,Seang Lim Kheng1,Pathmawathi Subramaniam3,Ming Moy Foong4,Jane Lim Ee1,Chin Loh Ee1,Loong Lam Chee1

Affiliation:

1. Department of Medicine, Faculty of Medicine, University Malaya Medical Center, Lembah Pantai, Kuala Lumpur, Malaysia

2. Department of Psychological Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

3. Department of Nursing Science, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

4. Department of Social and Preventive Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia

Abstract

A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 20 adult palliative care inpatients of University Malaya Medical Centre. The results were thematically analyzed. Ten basic themes were generated (1) loss and change → differential suffering, (2) care dependence → dependent suffering, (3) family stress → empathic suffering, (4) disease and dying → terminal suffering, (5) health care staff encounters → interactional suffering, (6) hospital environment → environmental suffering, (7) physical symptoms → sensory suffering, (8) emotional reactions → emotional suffering, (9) cognitive reactions → cognitive suffering, and (10) spiritual reactions → spiritual suffering. An existential–experiential model of suffering was conceptualized from the analysis. This model may inform the development of interventions in the prevention and management of suffering.

Publisher

SAGE Publications

Subject

General Medicine

Reference51 articles.

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