Perceptions of Advance Care Planning Needs of Persons Living With HIV in Appalachia: A Qualitative Descriptive Study-Reference-Cited by-同舟云学术

Perceptions of Advance Care Planning Needs of Persons Living With HIV in Appalachia: A Qualitative Descriptive Study

Published:2022-04-20 Issue:12 Volume:39 Page:1452-1459
ISSN:1049-9091
Container-title:American Journal of Hospice and Palliative Medicine®
language:en
Short-container-title:Am J Hosp Palliat Care

Author:

Hutson Sadie Pauline¹^ORCID,West Frankie L.²,Giron Joelle¹

Affiliation:

1. College of Nursing Knoxville, University of Tennessee, Knoxville, TN, USA

2. College of Arts and Sciences, Western Carolina University, Cullowhee, NC, USA

Abstract

Persons living with Human immunodeficiency virus (HIV) are living longer, healthier lives due to advancements in antiretroviral therapies and access to lifelong treatment. Yet, in rural Appalachia, access to adequate medical care is complicated by factors such as geography and lack of access to resources. The purpose of this study was to explore the perceptions of advance care planning (ACP) needs of persons living with HIV (PLWH) in Appalachian Tennessee and Alabama. Using a qualitative-descriptive design, we analyzed patterns of responses to face-to-face, semi-structured interviews of 40 PLWH as part of a larger multi-site mixed method study. Data demonstrated high patient satisfaction with medical care and good relationships with providers. However, common themes arose surrounding stigma, inadequate finances, and dislike of the term “end-of-life.” Findings from this study fill a gap in the extant science pertaining to the focus of ACP in the unique population of rural Appalachia.

Funder

National Institute of Nursing Research

Publisher

SAGE Publications

Subject

General Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/10499091221087697

Reference21 articles.

1. The end of AIDS: HIV infection as a chronic disease

2. CDC. Diagnoses of HIV infection in the United States and dependent areas 2018. Atlanta, GA: Centers for Disease Control and Prevention. www.cdc.gov/hiv/pdf/library/reports/surveillance/cdc-hiv-surveillance-report-2018-updated-vol-31.pdf Accessed December 1, 2020.

3. CDC. Estimated HIV incidence and prevalence in the United States, 2010–2016. Atlanta, GA: Centers for Disease Control and Prevention. Accessed Online, 2019http://www.cdc.gov/hiv/library/reports/hiv-surveillance.html.