Navigating the care of families with a child or children with autistic spectrum disorder

Author:

Harvey Professor Clare1ORCID,Willis Emeritus Professor Eileen2,Brown Dr Janie3ORCID,Byrne Amy-Louise4ORCID,Baldwin Associate Professor Adele4,Heard David4,Augutis Wendy4

Affiliation:

1. Central Queensland University, Australia; Massey University, New Zealand

2. Central Queensland University, Australia; Adelaide and Flinders University, Australia

3. Curtin University, Australia; St John of God Midland Public and Private Hospital, Western Australia; Central Queensland University, Australia

4. Central Queensland University, Australia

Abstract

The aim of this project was to better understand nurse navigators work with children and families who are living with severe autism spectrum disorder to achieve improved health and wellbeing outcomes. Nurse navigators were introduced into the public health sector in Queensland in 2016, with 400 navigators currently working across 16 health services in diverse geographic and demographic settings. Narrative inquiry was used to explore one nurse navigator’s journey working with children and families living with severe Autism. The challenges of rigid health systems to adapt to the requirements of children with special needs, particularly in relation to care in the emergency department and where interventional procedures are necessary were apparent. Nurse navigators can effectively co-ordinate the care of an extremely vulnerable patient cohort and provide essential advocacy in a health system that is rigid and lacking the flexibility to deal with individual needs.

Funder

Department of Health, Queensland

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Health Professions (miscellaneous)

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