Participation in Home Therapy Programs for Children with Cerebral Palsy: A Compelling Challenge

Abstract

In this grounded theory study, the authors purposed to generate a conceptual model of the experience of parents and therapists involved in home therapy programs for children with cerebral palsy. There were 12 participants: 4 therapists and 8 parents. Through constant comparative method of analysis, a process emerged interpreted as the compelling challenge comprising two time-distinct phases that described the parents’ journey of adjustment and their capacity to participate in activities to improve their child’s abilities. Initially, parents were coming to grips with the diagnosis, and this precluded their full involvement in home activities. However, at a point of breakthrough, they entered a phase of high participation interpreted as striving to maximize. The authors discuss the implications of this process for service providers and therapists.