Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals

Author:

Elina Haavisto123,Sofia Eriksson4,Tricia Cleland Silva5,Jaana-Maija Koivisto2,Katariina Kausamo2,Anu Soikkeli-Jalonen4ORCID

Affiliation:

1. Health Sciences Unit, Faculty of Social Sciences, Tampere University, Finland

2. Department of Nursing Science, University of Turku, Finland

3. Satakunta Central Hospital, Pori, Finland

4. Finno-Ugrian and Scandinavian Studies, Faculty of Arts, University of Helsinki, Finland

5. Hanken School of Economics, Helsinki, Finland

Abstract

The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient’s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

Funder

Finnish Government research funding

Publisher

SAGE Publications

Subject

Life-span and Life-course Studies,Critical Care and Intensive Care Medicine,Health (social science)

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