Factors Associated With the Location of Expected Pediatric Deaths in the Palliative Care Context

Author:

Coombs Sandra1,Aouad Phillip12ORCID,Jaaniste Tiina123

Affiliation:

1. Departments of Pain and Palliative Care, Sydney Children’s Hospital – Randwick, Sydney, Australia

2. Department of Pain, Sydney Children’s Hospital – Randwick, Sydney, Australia

3. School of Women’s and Children’s Health, University of New South Wales, Sydney, Australia

Abstract

Early planning and knowing which factors to consider when planning the location of death (LOD) of a palliative child, may help minimize the burden of hasty decision-making in the future, and may provide families with a sense of control. The current paper reviewed which factors were associated with pediatric LOD and further considered some emerging factors that should are important to better facilitate integrative planning. Three overarching areas of consideration related to pediatric LOD planning were identified including health service factors, familial factors and patient factors. Multiple sub-factor considerations are presented. Further, the paper presents a conceptual model of the factors found to be related to pediatric LOD planning. The limitations that exist with rigorously and empirically studying pediatric LOD preferences are apparent from the dearth of knowledge seen in the field. However, future studies should continue to examine such factors more closely to better understand the nuanced implications.

Publisher

SAGE Publications

Subject

Life-span and Life-course Studies,Critical Care and Intensive Care Medicine,Health (social science)

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