Crowdsourcing the Perception of the Bicoronal Scar in Open Cranial Vault Reconstruction

Author:

Roy Tulsi1ORCID,Chavez Julia2ORCID,Cho David3ORCID,Sobota Rafal4,Reid Russell R.5

Affiliation:

1. Yale New Haven Hospital, New Haven, CT, USA

2. University of Chicago School of Medicine, Chicago, IL, USA

3. University of Chicago, Chicago, IL, USA

4. Northwestern Memorial Hospital, Chicago, IL, USA

5. University of Chicago Medical Center, Chicago, IL, USA

Abstract

Purpose: Within open cranial vault reconstruction (CVR) for craniosynostosis, efforts have been directed at minimizing the bicoronal scar, which contributes to increased patient stigmatization and decreased parental satisfaction. To understand these esthetic considerations across multiple centers, we evaluated demographic and clinical determinants of patient scar self-consciousness, parental scar satisfaction, and parental satisfaction with their children’s overall medical and surgical care. Methods: A 25-item questionnaire was distributed within an 18 500-member craniosynostosis parental online support group. Parents were asked to grade patient scar self-consciousness, parental scar satisfaction, and parental satisfaction with their children’s overall care on a 10-point Likert scale. A t-test and linear regression were performed for binary and continuous variables. Results: Of 838 responses, 516 met inclusion criteria. 32% of patients had visible scar alopecia and 25% of respondents reported their child’s hair is deliberately styled to disguise the scar. 2% of patients underwent scar revision. Older age, complications, ongoing symptoms, and increased number of surgeries were negatively associated with parental scar satisfaction, patient self-consciousness, and parental satisfaction with overall management. Ethnicity and hair texture were not associated with patient self-consciousness or parental satisfaction with care. Incision type (zig-zag/wavy compared to straight bicoronal incisions) showed no significant difference in subjective outcomes measures or rates of external stigmatizing behavior between the 2 groups. Conclusions: Bicoronal scarring has complex and multifaceted psychosocial effects. Advanced age, complications, ongoing symptoms, and increased number of surgeries are key determinants of patient and parent satisfaction, though parental esthetic satisfaction may be more sensitive to external stigmatizing behavior. This study calls for a reappraisal of conventional teaching regarding the impact of incision design. While craniofacial morphology, neurological development, and social functioning may be more foundational to overall patient and parent satisfaction, the esthetic value of the bicoronal scar should not be undervalued.

Publisher

SAGE Publications

Subject

Applied Mathematics,General Mathematics

Cited by 1 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Using the SCAR-Q to Evaluate Morbidity of Scars in Craniosynostosis Repair;The Cleft Palate Craniofacial Journal;2024-08-14

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3