Supportive use of digital technologies during transition to adult healthcare for young people with long-term conditions, focusing on Type 1 diabetes mellitus: A scoping review

Author:

Orpin Joy1ORCID,Rodriguez Alison2,Harrop Deborah1,Mills Elizabeth3,Campbell Fiona4,Martin-Kerry Jacqueline5ORCID,Turner James1,Horsman Janet1ORCID,Painter Jon1ORCID,Julian Maddie6,Dimitri Paul7,Howsley Philippa7,Swallow Veronica1

Affiliation:

1. Sheffield Hallam University, Sheffield, UK

2. University of Leeds, Leeds, UK

3. University of Sheffield, Sheffield, UK

4. Leeds Teaching Hospitals NHS Trust, Leeds, UK

5. University of Leicester, Leicester, UK

6. Digibete CIC, Leeds, UK

7. Sheffield Children’s NHS Foundation Trust, Sheffield, UK

Abstract

Type 1 diabetes mellitus (T1DM) is the second most common chronic or long-term condition (LTC) affecting young people (YP); when transitioning from paediatric to adult healthcare, young people with LTCs such as T1DM are expected to self-manage medication, diet and clinical appointments. This scoping review aimed to analyse research examining ways digital health technologies were used to support YP with LTCs during transition from paediatric to adult healthcare and to establish YP’s needs, experiences and challenges when transitioning. We aimed to identify knowledge gaps and inform development of a novel chatbot with components such as avatars and linked videos to help YP with T1DM gain self-management confidence and competence during transition. Nineteen studies identified through searching five electronic databases were included in this review. A combination of digital health technologies was used to support transition of YP with LTCs to adult healthcare. Barriers to successful transition were reported and YP described the importance of social relationships and transition readiness and expressed the need for individualised interventions that acknowledge social factors such as work and college. No supportive chatbots with components to help YP with T1DM were identified. This contribution will inform future development and evaluation of such a chatbot.

Funder

NIHR Invention for Innovation

Publisher

SAGE Publications

Subject

Pediatrics,Pediatrics, Perinatology and Child Health

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