Ways of working: CCNs and chronic illness

Abstract

■ The study explored the role/skills used by CCNs caring for children with chronic illness. ■ A participant inquiry paradigm was used and data were generated using semi-structured interviews supported by extensive field notes. ■ All the CCNs described the special relationship with the children and their families which was characterised by deep understanding of current and future needs. ■ The CCNs emphasised 'ways of working' which involved high degrees of trust, flexibility, support, reflexivity and empowerment. ■ CCNs help families regain, maintain and develop control over their lives.