Compas-Y: A mixed methods pilot evaluation of a mobile self-compassion training for people with newly diagnosed cancer

Author:

Austin Judith1ORCID,Schroevers Maya J2,Van Dijk Jelle3,Sanderman Robbert2,Børøsund Elin4ORCID,Wymenga A Machteld N5,Bohlmeijer Ernst T1,Drossaert Constance H.C.1

Affiliation:

1. Section of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands

2. Department of Health Psychology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands

3. Faculty of Engineering Technology, University of Twente, Enschede, The Netherlands

4. Department of Digital Health Research, Division of Medicine, Oslo University Hospital, Oslo, Norway

5. Department of Internal Medicine, Medisch Spectrum Twente, Enschede, The Netherlands

Abstract

Objective Compas-Y is a compassionate mind training app that was co-designed to be fully adapted to mobile technology and to people with newly diagnosed cancer. This study aimed to evaluate the use, appreciation and impact of the app. Methods Seventy-one people with cancer who created an app account were included (38% breast cancer, 72% diagnosed <4 months ago, 76% received chemotherapy). Participants had very high baseline scores of self-compassion. In a convergent mixed methods design, back-end log-data ( n = 71), pre-post surveys ( n = 34) and semi-structured interviews ( n = 23) collected for >8 weeks and were concurrently analysed using joint displays. Results About half of the participants (45%) used 4 of the 6 modules. Compas-Y was highly appreciated, with all content considered relevant and a source of support. Experienced benefits related to improved mental health. Particularly, we found significant changes in anxiety, but not in depression or well-being. In the interviews, people reported experiencing more rest and more positive emotions due to using the app. Process benefits included significant reductions in self-criticism (inadequate self and self-blame), but not self-compassion. In the interviews, people reported improved self-compassion and less self-criticism, more self-awareness, recognition and support, and improved emotion regulation and coping. The surveys did not capture the full range of outcomes that participants reported in the interviews. Conclusions Compas-Y is a highly appreciated mobile intervention that supported users in aspects of their mental health. Findings are discussed in terms of reach and adherence, app functionalities, co-design and tailoring of cancer-related and compassion-based eHealth.

Funder

KWF Kankerbestrijding

Publisher

SAGE Publications

Subject

Health Information Management,Computer Science Applications,Health Informatics,Health Policy

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