Co-design of a theory-based implementation plan for a holistic eHealth assessment and decision support framework for people with dementia in care homes

Author:

Gillam Juliet1ORCID,Evans Catherine12,Aworinde Jesutofunmi1,Ellis-Smith Clare1,Ross Jamie3,Davies Nathan4

Affiliation:

1. Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, Cicely Saunders Institute of Palliative Care, King's College London, London, UK

2. Brighton General Hospital, Sussex Community NHS Foundation Trust, Brighton, UK

3. Centre for Primary Care, Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Queen Mary University of London, London, UK

4. Centre for Ageing Population Studies, Research Department of Primary Care and Population Health, University College London, London, UK

Abstract

Background Despite positive findings around the use of eHealth in dementia care, it is rarely translated into routine practice. This can be facilitated by early involvement of end-users in the development of an implementation plan. This study aimed to co-design strategies to implement an eHealth intervention, the EMBED-Care Framework, to support assessment and decision-making for people with dementia in care homes. Methods A qualitative co-design method was applied through a series of workshops. Participants included family carers and health and social care practitioners. People with dementia were included through a series of stakeholder engagement meetings. The workshops focused on co-developing strategies in response to identified determinants of implementation. A codebook thematic analytic approach was taken, guided by the Normalisation Process Theory (NPT). Results Three workshops were conducted from July 2021 to November 2021, attended by 39 participants. Three overarching phases of implementation were identified which aligned with the constructs of the NPT: (a) incentivising adoption of the Framework, which requires promotion of its benefits and alignment with recommendations for good quality dementia care to engage stakeholders, relating to ‘coherence’ and ‘cognitive participation’ constructs; (b) enabling its operation, which requires ensuring compatibility with care home processes, provision of training and support from ‘champions’, relating to ‘collective action’; (c) sustaining use of the Framework, which requires monitoring of implementation and appraisal of its effects, relating to ‘reflexive monitoring’. Conclusions We have developed a multi-strategy, theoretically driven plan to implement eHealth to support assessment and decision-making for people with dementia in care homes. Successful implementation requires incentivisation to adopt, ability to operate and motivation to sustain use of eHealth. The plan is strengthened through collaborating with end-users to increase its value, credibility and real-world relevance. The theoretically informed strategies target mechanisms of the NPT, demonstrated to shape the implementation process and outcomes, ready for testing.

Funder

Economic and Social Research Council (ESRC) and National Institute for Health and Care Research (NIHR) and ESRC/NIHR Dementia Initiative 2018

Publisher

SAGE Publications

Subject

Health Information Management,Computer Science Applications,Health Informatics,Health Policy

Reference46 articles.

1. Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019

2. An International Definition for “Nursing Home”

3. British Geriatric Society. End of Life Care in Frailty: Care homes, https://www.bgs.org.uk/resources/end-of-life-care-in-frailty-care-homes (2020).

4. Care Home. Care home stats: number of settings, population & workforce, https://www.carehome.co.uk/advice/care-home-stats-number-of-settings-population-workforce (2022).

5. Alzheimer's Society. Dementia UK Report, https://www.alzheimers.org.uk/about-us/policy-and-influencing/dementia-uk-report (2014).

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