Evaluating an interactive tool that reasons about quality of life to support life planning by older people

Author:

Maiden Neil1ORCID,Hide Sophie1,Lockerbie James1,Stumpf Simone2,Hoe Juanita3,Hirani Shashi4

Affiliation:

1. Bayes Business School, City, University of London, London, UK

2. School of Computing Science, University of Glasgow, Glasgow, UK

3. School of Medicine and Biosciences, University of West London, London, UK

4. School of Health Sciences, City, University of London, London, UK

Abstract

Objectives In response to the lack of digital support for older people to plan their lives for quality of life, research was undertaken to co-design and then evaluate a new digital tool that combined interactive guidance for life planning with a computerised model of quality of life. Method First, a workshop-based process for co-designing the SCAMPI tool with older people is reported. A first version of this tool was then evaluated over eight consecutive weeks by nine older people living in their own homes. Four of these people were living with Parkinson's disease, one with early-stage dementia, and four without any diagnosed chronic condition. Regular semi-structured interviews were undertaken with each individual older person and, where wanted, their life partner. A more in-depth exit interview was conducted at the end of the period of tool use. Themes arising from analyses of content from these interviews were combined with first-hand data collected from the tool's use to develop a description of how each older person used the tool over the 8 weeks. Results The findings provided the first evidence that the co-designed tool, and in particular the computerised model, could offer some value to older people. Although some struggled to use the tool as it was designed, which led to limited uptake of the tool's suggestions, the older people reported factoring these suggestions into their longer-term planning, as health and/or circumstances might change. Conclusions The article contributes to the evolving discussion about how to deploy such digital technologies to support quality of life more effectively.

Funder

EPSRC

Publisher

SAGE Publications

Reference73 articles.

1. World Health Organization. Constitution of WHO: principles, http://www.who.int/about/mission/en/ (2018, accessed 23 August 2018).

2. EIP AHA. The voice of older persons at EU level, https://www.age-platform.eu/glossary/eip-aha-european-innovation-partnership-active-and-healthy-ageing (2022, accessed 1 March 2022).

3. NHS. A practical guide to healthy ageing, https://www.england.nhs.uk/publication/a-practical-guide-to-healthy-caring/ (2016, accessed 1 March 2022).

4. What does quality of life mean to older adults? A thematic synthesis

5. Changes in the Quality of Life of People With Dementia Living in Care Homes

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