Communication online with fellow cancer patients: Writing to be remembered, gain strength, and find survivors

Abstract

This qualitative research explored how cancer patients’ writing and reading on the Internet play a role in their illness experience. Focus-group interviews were conducted, with 34 cancer patients participating. A grounded qualitative analysis method was applied to analyze the interview transcripts. The results show that by writing personal blogs, cancer patients reconstructed their life story, expressed their closure of life, and expected to be remembered after death. Reading fellow cancer patients’ stories online significantly influenced cancer patients’ perceptions and expectations of their own illness prognosis, and that influence was sometimes greater than that of the doctors’ influence.