Formation and psychometric evaluation of a health-related quality of life instrument for children living with HIV in India

Author:

Das Aritra1,Detels Roger1,Afifi Abdelmonem A1,Javanbakht Marjan1,Sorvillo Frank1,Panda Samiran2

Affiliation:

1. Fielding School of Public Health, University of California, Los Angeles, USA

2. National Institute of Cholera and Enteric Diseases, India

Abstract

In-depth interviews and focus group discussions were conducted to inform the development of an instrument to measure the health-related quality of life of children living with HIV. The QOL-CHAI instrument consists of four generic core scales of the “Pediatric Quality of Life Inventory” and two HIV-targeted scales—“symptoms” and “discrimination.” A piloting exercise involving groups of children living with HIV and HIV-negative children born to HIV-infected parents provided evidence for the acceptable psychometric properties and usability of the instrument. It is expected that the QOL-CHAI can serve well as a brief, standardized, and culturally appropriate instrument for assessing health-related quality of life of Indian children living with HIV.

Funder

NIH Fogarty International Center

Publisher

SAGE Publications

Subject

Applied Psychology

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