Dismissal, distrust, and dismay: A phenomenological exploration of young women’s diagnostic experiences with endometriosis and subsequent support

Abstract

Endometriosis is associated with extensive physical and emotional difficulties, yet there is little research investigating the impact of the diagnostic journey particularly for younger women. Using semi structured on-line interviews and an interpretative phenomenological analysis, this study explored nine young women’s experiences of the diagnostic process and the significance of support during this period. Three main themes emerged: ‘the pursuit of a diagnosis’, ‘adjusting to a new normality’ and ‘the importance of effective support’. These experiences revealed clinical shortcomings and potential improvements to current guidelines and practices to facilitate a more emboldening process for patients.