Patient Empowerment in Clinical Genetics Services-Reference-Cited by-同舟云学术

Patient Empowerment in Clinical Genetics Services

Published:2008-10 Issue:7 Volume:13 Page:895-905
ISSN:1359-1053
Container-title:Journal of Health Psychology
language:en
Short-container-title:J Health Psychol

Author:

McAllister Marion¹,Payne Katherine²,MacLeod Rhona³,Nicholls Stuart⁴,Dian Donnai ⁵,Davies Linda⁶

Affiliation:

1. Nowgen, A Centre for Genetics in Healthcare, Central Manchester and Manchester Children's University Hospitals NHS Trust, & Academic Unit of Medical Genetics, The University of Manchester,

2. Nowgen, A Centre for Genetics in Healthcare & Academic Unit of Medical Genetics, The University of Manchester

3. Central Manchester and Manchester Children's University Hospitals NHS Trust & Academic Unit of Medical Genetics, The University of Manchester

4. Nowgen, A Centre for Genetics in Healthcare

5. Nowgen, A Centre for Genetics in Healthcare, Central Manchester and Manchester Children's University Hospitals NHS Trust, & Academic Unit of Medical Genetics, The University of Manchester

6. Nowgen, A Centre for Genetics in Healthcare & Health Economics Research at Manchester, The University of Manchester

Abstract

Outcome measurement in clinical genetics is problematic because the patient benefits are difficult to measure. The aim in this qualitative grounded theory study was to develop a theoretical framework describing the patient benefits from using clinical genetics services. Seven focus groups and 19 interviews were conducted with patients, patient group representatives, and health professionals. Data analysis resulted in construction of a model of empowerment summarizing the patient benefits from using clinical genetics services. Empowerment is similar to the concept of perceived personal control (PPC), and a measure of PPC has been developed for use in evaluations of clinical genetics services. However, empowerment includes some benefits not captured by PPC related to empowerment of other at risk relatives, and future generations.

Publisher

SAGE Publications

Subject

Applied Psychology

Link

http://journals.sagepub.com/doi/pdf/10.1177/1359105308095063

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