Improving kidney care for people with severe mental health difficulties: A thematic analysis of personal and family members’ perspectives

Abstract

People with severe mental health difficulties (SMHDs) often have poorer access to kidney healthcare. To better understand the barriers and facilitators to kidney healthcare for this population, we conducted interviews with nine individuals with SMHDs and four family members. Through reflexive thematic analysis, we generated three themes: (1) ‘ One size doesn’t fit all’ describes the need for individualised kidney healthcare, adapted to meet the specific needs of each person with a SMHD. (2) ‘ You just can’t say, “I’m only dealing with your kidney here”’ describes how fragmentation of physical and mental healthcare services can lead to poorer outcomes for people with SMHDs, underscoring the need for coordinated care. (3) ‘ Just treat me with respect’ describes the impact of healthcare provider attitudes. Overall, participants praised the dedication and kindness of renal clinicians. However, some participants also described experiences of stigma and discrimination, and called for additional education for healthcare providers regarding SMHDs.